Thinking Out Loud

So here I am, upright and alert at 1 am. The upright part is a constant struggle, but the alert part, happens a lot. I told myself I was taking a hiatus from blogging, and I certainly have kept true to that. The problem is, the mind didn’t stop writing. For me, I find myself composing a million entries in my mind, but not having the willpower to physically bother to just type it out. It’s like that is one step too much a lot of the time the past few months. So I lay there and think about things. Religion, politics, the state of my health, family drama, sometimes zombies after watching too much of The Walking Dead. I craft it all out in my head, what I would say, IF I was writing. Telling myself that the therapeutic value of writing is something that I have found helpful in the past, but still, not actually getting up and doing anything about it. So, still in the fashion of not making promises to myself I don’t know if I’ll keep, I sit once more trying to jumpstart the disconnect between my brain and putting it down on paper (or blog as the case may be)

I have been though a lot since I was doing this as a regular thing. My health has been a roller coaster of coming to terms with the way things are and trying to manage life as things get thrown at me. I spent three months recently not eating enough to sustain energy to function, because Gastroparesis decided to take over my body on top of the Rhuematoid Arthritis becoming increasingly hard to manage. Spending days on end fearing and steering away from food, having my joints uncontrollably ache to the point of needing extra assistance walking and surviving in general just sum up a pretty miserable winter by most counts. We have been adjusting to Ken working nights, sleeping days and not quite knowing where I fit into all that. Digging out of financial issues, trying to retain a tether to friendships I haven’t been able to keep up with, and going into a pretty deep depression have dominated all in the past few months. At one point, I just wanted to curl up in the most remote corner of my house, with a blanket and just not think anymore. The freedom of stretching out in bed seemed even too overwhelming some nights. I went off pretty much all my medications and am currently struggling to get back into a regimen that keeps me as functional as possible. I had plenty to be thankful for, yet bringing myself out of the pit was something I just could not seem to undertake. Sometimes its hard to think about the reality that it probably WON’T be the last time I go through this sort of thing. That I just have to keep moving on and letting myself take the time to rest and reorient as needed. Lather, rinse, repeat.

At the moment, we are dealing with the logistics of having our car damaged in a car accident, dealing with insurance and the waiting game of getting our car back. Ken is on his way out the door for two weeks military assignment in Hawaii, which doesn’t include me, and I’m jealous about that. He better look sufficiently sad in every picture he takes, the nerve. I have to mentally and physically prepare to drive up to DC for a few days, mostly to help out my grandmother with some stuff, maybe feel good enough to enjoy a few things while I am there. It certainly helps that the rental SUV we have at the moment, I thoroughly enjoy and I might have to give it back with great sadness when all things car are completed.

In other news I have been craving eggs on my burgers lately, and its kinda been non stop on that end…I want one right now actually. Which reminds me, our oven is broke and I need to call that in.

It’s Hard Admitting Real Life Behind The Facade.

So it’s been a month since Ken graduated. And things are hard for us. REALLY hard. I’ve never felt this uncertain before. Ken keeps going on positive interviews and then not hearing any news for weeks, or in one case an internal applicant suddenly popped up and got priority over him. Everyone is impressed with his resume, he is a friendly interviewer, AND he has the degree with 12 years experience ¬†there is just so much competition out there apparently. As his wife, I want to just bust into these places and tell them what talent they might miss out on because I used to work with him as a colleague as well, but ……that would be inappropriate. So here we sit, bills piling up, my SSDI case on appeal, no jobs, being bailed out by the greatest family member in my life. And I feel horrible about it.

It’s why I took my friend’s advice and started this therapeutic art thing. Its kinda what’s keeping me ¬†engaged at all with life, even if I’m just focusing on a piece of paper, a pen and the creative side of my mind. It’s working for the anxiety at that moment. That’s also the problem. After that moment is over, it’s anxiety city up in here again, and I start getting manic because its one of my natural actions to anxiety. Either I want to soothe myself with going and playing with the world, money and consequence be damned, or I go into the dark depression where I want to be swallowed into a black hole and ignored by everything with a pulse for days on end. I have anxiety meds, but i really only use one of them at night to sleep. I worry about the other, because I’m just on so much medication for other health issues it kills me to accept one more. I don’t know WHY think the Ativan is less important than the 17 other pills I take (by last count), but something in my subconscious feels its something I can sacrifice.

It doesn’t help much either that Ken will be leaving for a month in a couple weeks for Ft Knox and we are going to be awaiting some more orders for him to be gone another 3 months to Ft Sam in Texas. But hey, its pay right? We are even looking into going back on active duty on the reserve side because a place may be opening up in his current unit, but that is in its baby stages of being worked out right now. Don’t want to jinx it.

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Cognitive Skills Severely Impaired

Damn it I just want to sleep. I would give my right arm right now for REAL uninterrupted, healthy sleep.

I have had sleep issues for about as long as I can remember now. Between unrestful and odd sleeping patterns, to straight up insomnia I dread nights. I also hope every night that this is he night that will be different. It never is. I’m always tossing and turning, aware of every ache and pain in my body, never in a comfortable position to relax, and waking up on average every hour on the dot. Green Day’s Insomnia plays in my head pretty much constantly. My brain doesn’t work right, I can’t carry a conversation half the time and I have not driven my car in over three weeks because I’m just not fit to.

Yes I’ve tried Advil pm, melatonin, tea, klonopin, Ativan, ALL my night meds have drowsy side effects, and had a sleep study done. No sleep apnea, but I do have restless leg syndrome. Basically I’ve been told to keep trying things I’m already doing, let my body sleep when it’s ready and adjust to its schedule. Right now I get my best sleep between 7 and noon. Pretty fucking convenient right? And double that with the Chronic fatigue and I have been living one huge party life lately of feeling pretty much like death. So for all those I’ve been neglecting, I’m so sorry. I’m just trying to get it together here.

My darling husband on the other hand, will sleep anywhere:

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Adventures in the ER

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Got to love trips to the ER right? Three hours to get a bed. And I have duck dynasty for roommates where one of them injured their dick and is letting their IV beep uncontrollably. I wish I could make that up. He seriously walked into the ER waiting room, holding his junk, blood running down his leg with his wife and friend and was all “ya’ll need to be fixin’ this up!” When they put me in the bed next to him 3 hours later Ken and I had to try to hold back our laughter at the absurdity of it all, because the guy kept making dick jokes from behind the curtain that divided us.

BUT, the reason I was there. I have had this pain in my left flank for 3 days that was growing. Hoping it was just muscular, I was just trying to ride it out. When I couldn’t roll over in the bed without wanting to scream though, that’s when I decided I needed at the very least, drug intervention. I was worried it was my kidneys again and I didn’t want to take chances with that. I hadn’t slept much in days over this. So off to St. Mary’s we went, where we waited 3 ridiculous hours in wretched pain in the ER while totally ambulatory got beds before I did, even after I checked in. I understand the concept of triage ALL too well. I’m no stranger to hospitals or even working in healthcare where you make those types of decisions, but from what I observed, this was bullshit. Nothing I could do to change that though, you’re at their mercy while you are there.

Turns out, after one UA, a CT, and a ton of blood work (which i have yet to see the actual results of, but never fear, crazy healthcare lady WILL get that) It was all muscular and there was a lot of inflammation in the muscle tissue surrounding…..my kidney area. So i wasn’t far off identifying WHERE the pain was at least. Big sigh of relief that it wasn’t my kidney at all though. Muscular inflammation I can wait out and work with. So with a nice dose of torodol and dilaudid to get me started, I was sent home with some pain killers and anti inflammatories to get that process started. I’m trying to lightly stretch it out at home, and do all the usual muscle pull types of things and following up with my doc because I was supposed to see her two months ago anyway. I’ve just been too fatigued to do so.

I hope that guy gets home with his dick intact. That catheter bag is going to go down awesome at the hunting club I bet.

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Up Shit’s Creek Without A Paddle.

My cat has conjunctivitis.

I feel like leaving this post just at that sentence alone, because that’s just the overall tone of my week. Everyone is laying around sick trying to give what they have to the next person (or cat). The lethargy in this house is epic. Ken and I have been sprawled out in bean bag chairs in the basement, pretty much just drooling, looking at the TV and willing there to be a magic fairy that would bring us food. And that fairy must know what we want, because we sure as hell didn’t.

I was shown the way into some totally free college courses by major universities this week as well and I’m pretty excited about the prospect, but to be honest, I don’t know how much I can handle at this present moment. I have registered for two classes, and I’m checking out two archived ones, but the commitment terrifies me even though its totally self paced. I haven’t been able to sign on but one night this week and only for like 30 min because of all the sick going around. But I want to share this resource for anyone interested in learning just to continue learning. Some of the programs will give you legit completion certificates at the end, and they will grade you and take your assignments serious as a college course should be taken for an extra small fee. edX.org is the website.

Also I have taken up some stress relieving meditative art. I’m getting into zentangle, which is kinda like creative pattern doodling, where you just make patterns and go with it, creating this wonderful masterpiece as you go. Mine are still on the new and crude side, but the really good ones are truly beautiful works of art.

I really need some stress relief in my life because financial relief isn’t coming soon enough. Ken has been going on interviews and there is good interest shown, but the hiring process potentially takes so long we are drowning in the meantime and have been turned down for every state assistance I have been able to apply for. Losing round 1 of my SSDI case was really a huge blow even though it was a long shot to begin with and I STILL have to appeal that. I don’t know if I have the strength to move on and do it, I’m just broke down right now really. The last thing I want is a legal battle. Just like the last thing I want is an eviction. And both of those are on the table it seems, when you are disabled and no one has any income coming in or help to offer. Things were supposed to get better. College degrees open doors right?

I feel like such a failure at life.

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My First Zentangle

Therapy By Abe Lincoln

Sometimes the best outings are the impromptu ones. Last night I just looked at Ken and said “Let’s go out.” Not even hesitating, he nodded and said “yeah, let’s do it”. Just like that we packed my camera bag, hopped onto the metro at 7pm and headed into the city. After one transfer and some metro reminiscing we ended up at the Smithsonian station, where we just started walking and photographing the National Mall. My DLSR gave out around the Washington Monument, and I had to iPhone it from there but whatever, we were having fun. We walked the Vietnam Memorial, and ended it with sitting on the steps of the Lincoln Memorial.

The Lincoln Memorial is a special place for me. I’ve spent a lot of time there day and night, sitting on those steps. Thinking about my life when i was happy, sad, anxious about things. Staring at others doing the same. The tourists, the solo people, people eating lunch on their lunch breaks. Its just one of those places where you can people watch every type of people imaginable and yet be lost in your own mind all at the same time. (and no one thinks you are insane if you run down the steps screaming JEN-NAY!!!!! and racing toward the reflecting pool. However security frowns on trying to get IN the water to meet up with the imaginary Jenny from Forrest Gump.)

We got our fill of sightseeing and tourist madness, (even met a couple willing to take a rare picture of us and is emailing it to us later!) and decided to walk to a different metro station to soak up a little more of the city before getting our grub on in Chinatown. Basically in Chinatown you just walk into a place and start eating and the place we chose had the usual chinese and sushi fare, and was pretty decent. We even went all out and split a bottle of sake. What’s nice about the city, is that kitchen’s are still booming at midnight so you can pretty much get a full meal anywhere on a Friday night, depending on what you want. We also discovered a THREE STORY WALGREENS with gourmet food in it, in case that’s of interest to anyone out there, because we were fascinated.

The impromptu night out was just what I needed to pretend I wasn’t in the pits of depression for a few hours, maybe even help me climb out with a little inspiration. That I can always come home, see my happy places and things can be ok for a few hours, when I can muster up the energy to get it together and try to get to them.