Struggling to the Top, Again.

To be perfectly honest, I’m tired and I want pierogies. Or sushi. But since I don’t have a car today, sushi is out of the question and I have a feeling Ken might be all sushi’d out. It’s all I want lately. So shortly I will attempt to stand long enough for some pierogies which will most likely evolve into pizza rolls, and I will then hit the bed like I have been doing manual labor all day. The truth is however, I haven’t been doing much manual labor all day. I caught up with a great friend today…. I MISS YOU KURT IRBY!!!!…..I cleaned the kitchen up a bit, and I have been exhausted the rest of the day.

We found out yesterday that I was denied round 1 of SSDI approval. While this was actually expected, my psyche is actually taking it as a blow. Those fuckers have NO IDEA what I deal with everyday, how I struggle to physically and mentally remain here on this earth and try to find a purpose in my life. How I DO NOT want to ask for help, yet I know I’m in no position at this point to make it on my own anymore.To someone on the street I may look like a normal human, but I assure you every step I take is calculated, every activity planned. Everything revolves around having the proper rest and pain under control to carry on. My goals aspire to be the girl who can support others like me from home, while taking care of myself, to let them know they are not alone, there are people out there willing to connect with them. But it cant happen if this stress in my life over where my next meal is coming from continues to be a problem. I need a little support myself so I can give back to those who need support as well. Is our system so broken that this can never be a possibility for me? I hope not. In the meantime, I need a lawyer and advocate to get me through these appeals so I can continue to fight this fight until I can bring some relief to myself and to Ken who is my steadfast supporter no matter what we face, or the outcome. I need to live up to this for him, and myself at this point.

Fibromyalgia is a Bitch.

Lately I’ve been experiencing a major fibromyalgia crash, which is why I’m not blogging as much. This time it’s coming in the form of a crippling fatigue and exhaustion that’s making staying alive difficult, so things like writing have taken a back burner. Don’t get me wrong, I’m using the tiny bit of energy I have to cook a meal and love it, or get done the essentials of the day, but ANYTHING beyond that is out of the question. I can only drive my car when absolutely needed because I’m afraid of passing out behind the wheel. So I’m struggling right now, but my spirits are actually pretty good about it, my crazy meds, and my RA meds seem to be working a bit. Also, I just became one of those sad pill organizer people because the Fibro fog is so bad I keep forgetting and/or double taking my morning pills and it’s gotten out of control….sigh.

On the exciting news, to me anyway, we got a Keurig machine and it’s my new best friend. A friend of ours gave us an opportunity to get one for a super good deal and I’m already declaring it the best purchase of the year and I’m so thankful to her! It would appear I’ve fallen in love with the French Roast sample included in the pack. This could get dangerous.

Today is also day one of Ken and I finally using our complex’s gym. I’m trying to stay moving after ceasing my physical therapy, and Ken has to be able to pass his 2 mile run after recently coming off his profile he has been on for years for mild asthma. The importance is high because he just GOT PROMOTED, and we are determined and excited to make this work and keep on keeping on with this. The Army isn’t easy and we really don’t love it much but we are so close, that we are in it to win it at this point.